Xavier's Newspaper Article

Here is the link to the article in The Press Enterprise about him using the webcam for school. It's a great story and we were all excited to see it in the paper!

(I hope this works....still new to the blogging thing)


http://www.pe.com/localnews/corona/stories/PE_News_Local_W_wwebcam26.2389558.html

On Hold Again

Hi Everyone,

Well Xavier was supposed to start his next phase of chemo this Wednesday, his ANC counts needed to be 750 to proceed. Unfortunately his levels were only 109. Which means his docs want him to take another week to try and build up his immunity. We are scheduled to start next Wed as long as his labs come back at 750 so keep your fingers crossed.

I also wanted to ask everyone if they had anything to do with a really cool thing that happened to X this week. A few days ago Xavier recieved a package from another Xavier, Xavier Nady of the New York Yankees. It was an official Yankees autographed baseball bat! He was so thrilled! (Jared was too!) So thank you to whoever is responsible for that fun and exciting surprise. There was no note enclosed and the return address was the New York Yankees Clubhouse, Bronx, NY.

I will keep you all posted. Pray that his numbers come up so we can get back to chemo!

Love, Cherie

Another Busy Few Weeks...

Hi Everyone,
As usual we have had alot going on. Since the last post (sorry it was so long ago) we have had another allergic reaction to chemo. X recieved another PEG, which is the one he had a reaction to last time. They premedicated him to try and hold off any reaction, but within a few hours of being home he started to not feel well, and was getting a lump in his throat. I called the oncologist and was told to go to emergency, since they do not want to mess with a reaction that involves obstructing his airway. He was immediately given a steroid shot to bring down the reaction, and was then admitted to CHOC for 24 hours of observation. He is doing fine now and the PEG chemo has been removed from his protocol now and replaced with a drug that has a lesser possibility of reaction. This new med is called Erwinia. So as of this past Tuesday, Xavier has completed the Consolidation phase of chemo and is moving on to the next phase called Interim Maintenance 1. This phase lasts 57 days and unfortunately includes 2 rounds of spinal chemo, as well as the new drug which is now given in his thigh muscle for a 6 day span. I dont know yet if it is every day for 6 days or every other day for 6 days. Either way it will be tough on him so please keep him in your prayers. I will update the blog when possible and let you all know how his progress is going.
On a lighter note, Xavier has some exciting things going on to cheer him up. Tomorrow X will have his first classroom experience via webcam with his classmates in his 5th grade class @ Susan B Anthony Elementary. His teacher Mrs Jones got the webcam for us at home as well as one for his class at school donated by our local Best Buy store. He is really looking forward to being a part of his class! Another exciting part about this is that The Press Enterprise will be there to document it because they are doing an article in the paper about him. So look for that soon!

Cherie