Good News!

I guess the lower chemo dosing is finally working, X had his labs done yesterday and his counts are at 1457! He has been feeling good lately, but over the weekend he was on the verge of a fever, luckily it didnt get too high so we narrowly escaped a trip to the hospital. His energy is coming back and he has been keeping busy with his home-schooling, he is really enjoying his science lessons right now. Yesterday I also spoke with the authorizations dept at CHOC to get an idea on when X can get his chest catheder removed, and we should have approval in about a week. Once we get that, we can schedule the surgery. We cant wait! It will be so nice for X to be able to shower normally and swim again! We go back to clinic in 2 weeks for spinal chemo, will update you again soon. Thanks for all of the prayers and support.

Cherie

Getting There

X went to clinic on Tuesday for IV chemo and bloodwork. His counts are at 949. They are coming up, just slowly...his Dr put him back on his oral chemo but just lowered all of the doses. He will do bloodwork again in 2 weeks, and will go back to clinic in 4 weeks for spinal chemo. He is feeling good, and had his cousin Trevor who lives in Las Vegas come down and stay for 4 days. They had a good time hanging out together and played LOTS of video games. :)
Thanks for all of the prayers, I will update you again soon.

Cherie

Locks of Love

On Sunday, Xavier's sister Ivy decided to donate 10 inches of her hair to "Locks Of Love", an organization that makes wigs for kids who have lost their hair due to illness. We are so proud of her for being a kind and generous kid! She loves her new haircut and could not wait to go to school on Monday and show off her new look. =)

X is hanging in there, we go to clinic tomorrow so I will update you on that soon.

Love, Cherie

Creeping Up

Well, X had his clinic appointment on the 1st and his counts are at 510. Not bad, but not great. His Dr is still keeping him off all chemo to give his body a break. We go back on the 7th for IV chemo no matter what his counts are, and his Dr will decide then if we get back to all of his oral chemo meds yet. I feel like we are always waiting for something...

X has been taking it easy but it is difficult for him because he feels good and wants to play. He is looking forward to this Sunday though, we are ordering "Wrestlemania" on pay-per-view for him so he has his calendar marked!

Keep X in your prayers for high counts next week. I will let you know how it goes.

Love, Cherie