Doing Great!

Hello everyone,

Xavier's surgery went really well! He was nervous of course, but the procedure itself only took about 20 mins. The longest part of the whole thing was the waiting around until the surgeon and anesthesiologist came up to go over everything. But after they wheeled him away they time flew by! When we went to see him in recovery it took him a few minutes to realize that everything was done, but within about 5 minutes he was eating a popsicle and said he felt great and was ready to go home! The surgeon said X could shower on Sunday (which he did, for the first time without having to be covered with plastic and tape) and he will be able to swim in a week. What an eventful birthday! When we got home he never even took a nap, he wanted birthday presents! =) We had a low key birthday celebration, Grandma Connie and Grandpa Ken came by for Woodranch for dinner and a Baskin Robbins ice cream cake. We also let X have his friend Dakota come over...I am such a pushover!
Tomorrow X has to have labs drawn to check his blood levels, they will have to do a regular draw since we dont have the catheder anymore but we are fine with that! His next clinic appointment is on June 30th for IV chemo, no spinal, yay! Will let you know how it all goes.

Love, Cherie

Doing Well

X had his appt for spinal chemo on the 2nd. Everything went well, his counts are at 2064 so his Dr increased the dosing on one of his meds. We got the results on his blood test that was checking to see how his body is metabloizing the chemo. His body is handling the mercaptopurine fine, but he is deficient in the ability to metabolize the methotrexate. In light of these results he will probably be on lowered doses of methotrexate for the duration of his treatment. The Dr assured me that this will not effect his recovery.
We got lots of good news at this appt, since Xavier's counts are stabilizing he will be able to sign up for baseball again!! I cant wait to see him out on the field!! He will also be able to join in on a few school functions at the end of this school year, like the state fair, field day, end of the year party, etc...
We are all getting anxious for Friday the 12th as well. X has his surgery to remove his chest catheder/broviac. What a crazy birthday gift for him! We have to be there @ 7:30am, surgery is scheduled for 9:30am, and we should be home in the afternoon sometime. Please keep X in prayer that everything goes smoothly and he is relaxed. Will update after the procedure and let you know how he is doing.

Love, Cherie