I Hate Flu Season!

Well, last weekend we were back in the hospital. Xavier was running a fever again when we went to clinic on Thursday and they admitted him and ran a bunch of tests to see what's going on. So after lots of bloodwork, a sinus Xray, and a chest Xray, all we know is that he caught whatever bug is going around. Unfortunately because his immune system is so low he can catch something and not be able to recover like he used to. He had 3 days worth of IV antibiotics as well as an IVIG which is an 8 hour IV drip of immune boosting serum. We were released on Sunday and he is doing much better. Fever free! As long as his counts are good he will start next Tuesday with Erwinia again. We are moving along as best as possible. He is trying really hard, and we are so proud of him. His appetite is nonexistent so I am trying everything to get him to eat better (he lost 2 pounds last week). If anyone has any yummy recipes to pass along I am willing to try anything!


Cherie

Busy Weekend...

Never a dull moment around here. The good news for this post is that Xavier is doing really well with the new medication, Erwinia. It's no fun for him to get shots in his legs every other day, but he is handling it like a superhero! (and so far no allergic reactions either). The bad news from this past weekend is that we spent it in the hospital. Xavier had an appointment for chemo on Friday, and when we went in he was running a low fever. They checked him again 2 hours later and it wasnt going down so his Dr. advised that we admit him to keep things under control. They took great care of him and had him on IV fluids, as well as IV antibiotics for 72 hours, which is standard procedure for cancer patients. Unfortunately, this is the rule everytime he has a fever. They cant be too careful in our situation. So it was a long weekend, and we are so glad to be home.

X has appointments for the next 3 days and then he gets a 9 day break which we are SO looking forward to. Hopefully I will get him to post here soon.

Love, Cherie

Re-adjusting

Well Xavier had spinal chemo Tuesday, and it was pretty rough for him. I think that since he has been on a break for a bit, getting all those meds really hit him hard. He also started his new med, Erwinia, which is the shot in his thighs. He will be getting a shot in each thigh every other day equaling 6 total doses. Yesterday was his first dose. and he did pretty well. He started to get a scratchy feeling in his throat last night so I called the oncologist and she told me to give him benadryl every few hours for the next 24 hours. It seemed to help and we made it through the night without having to go to the ER. We will be pretty busy for the next 2 weeks since we have to go to clinic every other day. I will post again with his progress soon.

Cherie

Finally!

After 3 weeks of waiting, Xavier's counts are at 1320. We start chemo again tomorrow, I will let you all know how he is doing and how he responds to the new med.

Thanks for the prayers!

Cherie

Not There Yet

Xavier's lab results were not where the needed to be last week. They need to be at 750 and he was at 648. Close but they still want to have his body build back up on it's own before we hit the chemo again. We had labs drawn today and are waiting for results. If they are 750 or above, we have an appointment tomorrow morning for spinal chemo, and then for the next several days he will need the intramuscular shots in his thighs daily for 6 days. Wish us luck.

Also, thanks so much to Grandma Connie, she was behind the mystery of the Yankees bat. =)

Will update you again when we have results.

Cherie