Well, it was fun while it lasted...unfortunately when X had his labwork done on Tuesday his counts were only 72. Which means no more outings for a while until his numbers come up again. His Dr took him off of all chemo for the week until his body recovers a bit. They thought about giving him a transfusion Wednesday but his hemoglobin count was up a bit so he ended up not needing it. He is pretty bummed to have to be stuck at home again, but we are hoping it is not for long. He goes to the clinic again on the 1st to see how he is doing, hopefully we will have better news. Hope you are all doing well and enjoying your weekend. Will post after his next appointment.
Love, Cherie
Saturday, March 28, 2009
Low Counts...
Posted by X-Man at 9:21 PM 2 comments
Friday, March 20, 2009
Post From X / Movie Review
Hey everybody. I have been getting out alot lately and I am getting my energy back. So far this week I went to a friends house, my Grandma Patti's house, the park, and I went to the movies! We saw the movie "Hotel For Dogs", it was sad, funny, and good all at the same time.I wanted to see it because I love dogs and all animals. My favorite part of the movie was when the kids invented all of the machines to take care of the dogs. The best one was the toilets with the pooper scooper bags! Thank you all for praying for me to get better. And a big thank you to my Colorado Fans for always posting comments. I like to read what you have to say and it makes me feel better. Hopefully I get my broviac catheder out soon, its a real pain and it feels like something sucking on your chest all day and night. My mom says it should be out in a few weeks. Gotta go now because I am watching wrestling on TV and I need to see if The Undertaker wins his match!
Love, Xavier
PS Thank you Uncle Del for my magazine subscription to National Geographic Kids
Posted by X-Man at 9:48 PM 2 comments
Wednesday, March 11, 2009
Out On The Town
Well, X had his clinic appointment yesterday and everything went well. He did his spinal chemo again without being sedated. He is one tough cookie! Even the Dr who did his procedure was surprised at how well he handled it. We had lots of questions now that X has been doing better and having more energy. His Dr said that he can go out in public a little bit now, as long as we are cautious and he doesn't overdo it. I think he is most excited to go to a movie. (a matinee, he will wear a mask, and we will sanitize his seat first...) Its hard to believe it has been about a year since he has been to the theater. As far as going back to school goes, I think we will play it by ear and see how he is doing. The Dr said he may as well just wait and go back in 6th grade, I thought he might want to go back at the end of this school year to be there for all the fun stuff...guess we will see who wins this battle. =) Like last month, we will do bloodwork in 2 weeks to see where his counts are (as of yesterday they were 780, not great because he has had a cold) and we go back to clinic in 4 weeks for chemo. I will let you know how he is doing soon. Maybe I can get him to post a movie review after we go to the theatre!
Love, Cherie
Posted by X-Man at 8:21 PM 1 comments
Sunday, March 1, 2009
No News Is Good News
Things have been pretty quiet around here lately. Xavier is doing well in maintenance and on Tuesday we did labs for the first time in 2 weeks and his ANC counts were 1653, so it seems as though he is coming back strong now that his body is getting a break from all of the intense chemo. We go back to clinic on March 10 for spinal and IV chemo, and will hopefully find out how they think he is doing and when we can get back to doing more "normal" things. He should be able to go back to school in about a month or 2, so we will see what the Dr says. We can definetly tell X is feeling better because he is getting more "cabin fever" than usual, and is spending much more time outside in the backyard and has more energy to play. It is nice to see him acting like a kid again! I will let you know how things go after the next clinic appointment. Hope we have more good news to report. :)
Cherie
Posted by X-Man at 8:32 PM 1 comments


