Surgery Scheduled!!

It has been an interesting few weeks around here. We had the consultation with the surgeon on the 13th which was not worth the $40 co-pay...all she did was ask what we needed to have done and then said she would call us in 1-2 weeks when she can put him on the schedule. So finally yesterday we heard from the scheduling dept who told us that we have a date set for ...June 12th... Xavier's 11th birthday. Another B-Day spent in the hospital is not what X was planning on but we want to get it done ASAP and if we didnt take this date we would have to wait longer. Luckily it is an outpatient procedure to have his catheder out, so he goes in @ 9:30am, and we should be home by late afternoon. The procedure itself only takes about 20 mins, the long part is the anesthesia. Once it is removed he will be able to shower within a day or 2, and can go swimming a few days after that! I cant wait to see him swimming again, he has really missed it!
We also had his bloodwork done on Tuesday. His counts are 1590, which is still really good. They are down a bit from the last time but that is to be expected since he had a spinal chemo 2 weeks ago. Our next appt is on June 2nd for a spinal and IV chemo. Will update again after that appointment.

Cherie

Making Progress

X had his appt on Tuesday for spinal chemo and IV chemo. Everything went really well, he did it without sedation again. What a tough cookie! He did feel pretty bad the rest of the day though, sore back, nausea, etc... The Dr decided to do a blood test to see how Xavier's body is metabolizing the chemo so far, because as of right now he is still on lowered doses. We will have results in a week or two. The Dr said that some kids just dont handle high doses, so that might be why his counts took a long time to recover. His labwork from Tuesday have his counts at 1795 which is GREAT! We also finally got the authorization from our insurance to have his catheder removed! He has a consultation appointment with the surgeon on the 13th to go over the procedure and explain everything. After that we should have the procedure scheduled in a week or 2. He cant wait! Will update again after the appt on the 13th.

Cherie

Make A Wish

This week we recieved paperwork from the Make A Wish Foundation. Xavier is SO excited! We will be having a meeting with 2 of their Wish Coordinators within the next few weeks to help Xavier decide what it is that he really, really wants. His wheels are turning like crazy! I think he has narrowed it down to a few ideas: a trip to New York, the Bahamas, MLB All Star game, or Wrestlemania...but we will see what he comes up with once he meets with Make A Wish. I will keep you all updated on this exciting new development.
X has an appointment on the 5th for spinal chemo and IV chemo. We should have more info on when his catheder can come out too. Will let you know when I have more info.

Cherie